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(First I must offer the disclaimer that I am not a photographer, either professional or amateur. So please forgive my inexperience with...


The overall composition of this piece is well balanced, both in the placement of objects (person, dragon-kitty, and bowl), and in use o...

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Devious Journal Entry

Journal Entry: Wed Feb 29, 2012, 5:52 PM
This journal skin was created by :icondwalker1047: and can be found here.


Today, February 29, 2012 is Rare Disease Day, cosponsored by EURORDIS (Rare Diseases Europe) and the U.S. organization NORD (the National Organization for Rare Disorders).


So I thought I'd take this opportunity to bring people's attention to the documentary RARE that follows two people with the rare disease Hermansky-Pudlak syndrome (HPS) as they enter a phase III drug trial for a medicine that is thought to help slow the progress of pulmonary fibrosis. HPS is thought to be as rare as one in a million, but it could be slightly more common, say one in three-to-four-hundred-thousand. But the pulmonary fibrosis associated with HPS shares most characteristics with a much more common condition idiopathic pulmonary fibrosis, so the drug being tested in the documentary is one that had been found to help with IPF. Unfortunately, even though the drug is generally considered about as safe as any other drug, the FDA still hasn't approved it, despite the fact that it has been approved in Europe.


The reason all this is important to me is that I have this condition myself and so does my sister, and we happen to have a form (HPS-1) that involves pulmonary fibrosis. So it's pretty important to me that they find a cure as soon as possible since death by pf is one of the least pleasant ways to go. D:



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Claire
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:iconstarlight-merian:
Starlight-Merian Featured By Owner Apr 3, 2015  Professional Traditional Artist
Thank you for the +fav +fav  ^,..,^
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:iconcarolinainberlin:
CarolinaInBerlin Featured By Owner Apr 3, 2015
Hey Claire, thanks for the fave :)
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:iconsammael-sin:
Sammael-Sin Featured By Owner Apr 2, 2015
Very Thank you for the love for my cute Vlad!!!
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:iconchrismck:
ChrisMck Featured By Owner Apr 2, 2015  Hobbyist Filmographer
Thank you for the fave!:D (Big Grin) 
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BradLeeCharles Featured By Owner Jan 17, 2015  Professional Traditional Artist
Thanks you for addling my piece to your collection 
Please Check out Brad Lee Charles Art on Facebook
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:iconaccvser13:
Accvser13 Featured By Owner Sep 22, 2014  Student General Artist
Thank you for the fav.
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OvidiuProtopopescu Featured By Owner Sep 22, 2014  Hobbyist General Artist
Thanks for the fav! :)
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:iconsammael-sin:
Sammael-Sin Featured By Owner Jun 27, 2014
Thank you for your love for my Kitty Vlad!!
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:iconelliotpoison:
elliotpoison Featured By Owner Jun 25, 2014  Hobbyist Traditional Artist
Thanks for the fave!! :D greetings!! :D
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:iconskunk4gwop:
skunk4gwop Featured By Owner Jun 22, 2014
Thanks for the fav, madame!
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