BlueCerinthe

Today, February 29, 2012 is Rare Disease Day, cosponsored by EURORDIS (Rare Diseases Europe) and the U.S. organization NORD (the National Organization for Rare Disorders). So I thought I'd take this opportunity to bring people's attention to the documentary RARE that follows two people with the rare disease Hermansky-Pudlak syndrome (HPS) as they enter a phase III drug trial for a medicine that is thought to help slow the progress of pulmonary fibrosis. HPS is thought to be as rare as one in a million, but it could be slightly more common, say one in three-to-four-hundred-thousand. But the pulmonary fibrosis associated with HPS shares most c

I've meant to update this journal for more than a year, now, but other things have had my attention and energy. Mainly, that I discovered the on-line asexual community (represented here on dA by groups like #Club-of-Aces (https://www.deviantart.com/club-of-aces), :iconAceWithCake:, and others), and I've been involved in asexuality awareness projects like the A Life podcast, the Hot Pieces of Ace collaboration channel on Youtube, and most recently Asexual Awareness Week 2011, which was the last week of October. (Btw, the AAW website has the best asexuality FAQ ever! :D) The other reason I haven't made a journal update for so long is that I still associate dA with a painful break

I finally did it!  I invented the perfect (at least in my kitchen and using my oven) gluten-free shortbread recipe!! ~carameldansenplz (https://www.deviantart.com/carameldansenplz)